Sorry I haven't posted anything til now. Vivian has been sleeping quite a bit of the day with periods of wakefulness. I have held her for about an hour and a half this morning and then for 3.5 hours this afternoon. She was awake from about 5 to 8pm tonight. I have read books to her, and we watch Baby Einstein movies. While lying down Vivian would reach over and press on her gloworm's tummy to make it sing. We got her sitting up straight different times so she would have some good coughs and keep her lungs open. Vivian even turned pages and touched the textured pictures in her book while leaning on Daddy's shoulder.
Vivian is loving her Daddy, I think! Not much changed today regarding her meds, although tonight they are going to reduce the frequency of morphine but keep the same dose. Her chest tubes are not draining much out, and I am anxious tomorrow to hear what the doctors have to say about taking one or both tubes out. We're getting closer, but it still takes time. Love, Keri
P.S. We did get one special treat today of a big smile from Vivian when I started playing a hand clapping hand jive with her. It was brief but awesome!