Marathon Day

This post refers to Wednesday, July 13, 2011

Vivian had a big day today.  First her feedings have been changed from continuous to night time only.  Brianna from PT came this morning and helped Vivian walk.  We have Vivian's walker here, and she used that to walk 140 feet!!!  (Yesterday she walked 6 feet).  Vivian had three or four wagon rides today.  We got permission to go outside, and we've been outside at the children's playground.  Vivian walked around a little bit there with my support.  Vivian also had a bath and shampoo.  She took a two hour nap and a one hour nap. 

Now here's the thing.  Her feeds were turned off at 9:45am, and our ongoing goal throughout the day has been to try and get Vivian to start eating.  By the way, Ken was here at the hospital with me for the day.  Together we tried to entice Vivian with food during different activities.  She probably to about a dozen small bites of different things and several sips of water.  It is a small succes in terms that she is not completely turning away food, but it is not nearly sufficient for her daily intake.  More on this later.  Love, Keri